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First alopecia support network looks to be voice for community

First alopecia support network looks to be voice for community

Thursday 25 July 2024

First alopecia support network looks to be voice for community

Thursday 25 July 2024


A new group looking to support individuals living with alopecia has announced its first events with a promise of love and understanding.

Emma Johns, the Support Group Lead for Guernsey, was approached by Alopecia UK to set up the network to fill a gap in the community by offering after care and support to those with the condition.

She plans to provide a safe space for people to navigate the challenging and isolating experiences of the condition and to build a sense of community and belonging. 

“This group is a place where people can connect with others going through similar experiences. We share stories, hints, tips, tricks and general life with alopecia. Come and join our supportive community where you will be warmly welcomed,” she said. 

“At the age of 14, I developed alopecia. For years I wore wigs; it was only in my mid-20s I started to brave going out and about with hats or scarves, now most of the time embrace my bald head every day.  

It’s taken many, many years to accept my alopecia and this has only happened thanks to being around others with the same condition, listening to their stories and getting inspired by them. 

The first support meeting is at 19:00 on 13 August at the Rock Community Church in St Sampson, and it will be quickly followed up with an awareness stall placed in Market Square on 14 September to mark alopecia awareness month. 

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Pictured: A poster for the meeting.

Ms Johns notes that alopecia can have different effects on people from mild to major hair thinning which can affect self-esteem and confidence. 

“Many people with alopecia face misunderstandings and stigma, which can lead to feelings of isolation.” 

She says they are aware of many people who are living with the condition locally, but the growing group hopes to make support and understanding more available. 

Our group continues to grow as more people become aware of the support available. We encourage anyone affected by alopecia, whether directly or through a loved one, to join us and benefit from the shared experiences and support. 

Pictured (top): Emma Johns.

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